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Links: Amyotrophic Lateral Sclerosis/Motor Neurone Disease - International - Medical Condition

ALS Information Web Sites

This open forum digest includes feedback from People with ALS /MND, their Caregivers, Doctors, Researchers and many others with information pertinent to ALS/MND. To Subscribe to the “ALS Digest”, Send E-mail To:

Argentina - ALS Society

Argentinian Website in Spanish. Ofrece a familiares, cuidadores y pacientes con enfermedades de la motoneurona

Australia - Pauls MND Page

I set up this Website mainly for those who have recently been diagnosed with Motor Neurone Disease . Hopefully these pages will provide all the information and HOPE that one needs to know. I am not a Writer , I`m just an average bloke living with MND passing on a few tips and stories that have helped me. Most of the information has been gathered from other Websites and is credited as such. Paul Vineburg

Australia - The Motor Neurone Disease Association of New South Wales (Inc)

The Motor Neurone Disease Association of New South Wales (Inc) (previously known as ALS-Motor Neurone Disease Association of NSW Inc) is a registered charity and support organisation which, through specialised services, has worked with people with all types of motor neurone disease, their families and carers since 1981.

Finland - Lihastautiliitto

Both in Finnish/English The Finnish Neuromuscular Disorders Association - is the organisation for persons with neuromuscular disorders, their family members and other supporters. The principal task of the organisation is bringing people together to share their experiences and to acquire advice, guidance and support from each other and experts in order to cope with the condition. Lihastautiliitto has about 3000 members. It has twelve regional branches and five local clubs, and also an active youth section that plans its own activities.

France - ALS France (Also in English)

In French C`est en partant de la constatation qu`il faut communiquer pour vivre qu`est n饬 il y a 14ans, en 1986, L`ASSOCIATION LUTTE ET SOUTIEN - MALADIES DU MOTONEURONE,

Germany - Deutsche Gesellschaft fur Muskelkranke

German Website in German.

International Alliance of ALS/MND Associations

Welcome to the Home Page and Web Site of the International Alliance of ALS/MND Associations. ALS and MND are abbreviations for Amyotrophic Lateral Sclerosis and Motor Neurone Disease respectively. ALS/MND is a neurological disease that affects over 350,000 of the world’s population, and kills over 100,000 every year. For more information about ALS/MND, click

Ireland - Steve Killeens Web Site

I`m locatedin Dublin, Ireland. I`m 44 years old, and have a background in Civil Engineeringand Project Management. I`m married with 3 children, ranging in ages between17 and 8. The burden of my disability is really on Kath and the kids....theyare a great support.

Italy - Associazione Italiana Sclerosi Laterale Amiotrofica

Italian website in Italian. La Sclerosi Laterale Amiotrofica (SLA)

Netherlands - Vereniging Spierziekten Nederland

De nieuwe VSN website biedt honderden pagina's informatie over spierziekten, behandeling van spierziekten, sociale wetgeving en de vereniging. Er zijn nieuwsberichten, ingedeeld per jaar. Uit de nieuwsberichten van voorgaande jaren is een selectie gemaakt. Ze bieden een soort historisch archief. De meeste teksten waren op de vorige site ook reeds te vinden. Er zijn echter enkele teksten over spierziekten toegevoegd, en andere teksten zijn enigszins aangepast.

The VSN was founded in 1967 and now has app. 8.000 members. More than 300 volunteers are actively supporting the Associations activities. The VSN maintains a network of 10 regional groups and 14 national diagnosis bound support groups. These groups look after medical developments, psycho social matters and technical appliances.

Scandinavian ALS Web site (Also in English)

The purpose of this website is to spread information about ALS. To give help and support. I was diagnosed with ALS in 1993. 26 years old the discovery chocked me. I tried to obtain information about the disease.

Sweden - Skandinavisk ALS Side

Both ion Swedish/English Siden vil gi deg nyttig informasjon om Amyotrofisk Lateral Sklerose.

USA - ALS Association

Excellent Web site. Up to minute information, Articles and Information which is are easy to read. Well designed and easy to navigate.

USA - The ALS Association

The ALS Association (ALSA) is the only national not-for-profit voluntary health organization dedicated solely to the fight against amyotrophic lateral sclerosis (often called Lou Gehrig's disease). The mission of The ALS Association is to find a cure for and improve living with ALS.
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