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Links: Cystic Fibrosis - UK - Medical Condition

CF Study.com

This web site is dedicated to provision of high quality evidence-based material for education and study in the field of cystic fibrosis. It is an independent web site without any external sponsorship or partners and is run on a voluntary non-profit basis. It is for everybody who may be interested in cystic fibrosis. There is no restriction of access to material on this site, and professionals, patients, parents, scientists and friends can all benefit from all the site content.

Cystic Fibrosis Resource Centre

This site has been produced by Solvay Healthcare Ltd., and is designed to be a useful source of information for cystic fibrosis patients, parents, doctors and other carers. Resources are provided which will hopefully help you in resolving problems and coping better with cystic fibrosis on a daily basis

Cystic Fibrosis Trust (UK)

The aims of the Cystic Fibrosis Trust Support Service, are that through advocacy and partnership, families, adolescents and adults with CF will be empowered so that they receive the services they need to enjoy the quality of life to which they aspire.

Leeds Antenatal Screening Service

CF is a serious inherited condition: people are born with it, they cannot acquire it. CF is normally diagnosed in the first year of life due to the presence of numerous symptoms; however, occasionally diagnosis is not made until later in childhood. Both males and females can have the condition. It does not affect intelligence. CF causes glands to produce excessive amounts of thick mucus in the lungs and digestive tract. In order to avoid chest infections and to aid digestion, affected individuals have daily treatment with inhalers, regular physiotherapy and enzyme tablets. The quality of life for CF sufferers has greatly improved due to the continuous efforts of research. However, life expectancy is still only 30-40 years and some people suffer serious health problems.

NHS Direct Online

National Health Service Online. Easy to navigate and use.

The Cochrane Cystic Fibrosis & Genetic Disorders Review Group

The Cochrane Cystic Fibrosis & Genetic Disorders Review Group comprises an international network of health care professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials in the treatment of cystic fibrosis and other genetic disorders. Activities of the Group are co-ordinated by its Editorial Base, located within the Department of Child Health, University of Liverpool, UK. We very much welcome interest from new consumers, referees and potential reviewers.

UK Cystic Fibrosis Database

the UK Cystic Fibrosis Database Project's Homepage. Started in 1995, and based at Tayside Institute of Child Health (part of the University of Dundee), the project develops and supports data entry and analysis software to maintain an audit trail of the clinical treatment of CF patients throughout the country.
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