Links: Cystic Fibrosis Information - International - Medical Condition
Cystic Fibrosis Foundation
The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. Cystic Fibrosis.com
Join our Internet community for cystic fibrosis patients, families and loved ones. We offer the latest news, community messageboards, and plenty of CF links and resources! CYSTIC-L
CYSTIC-L is a free email service dedicated to the exchange of information and support specific to cystic fibrosis.Since 1994, CYSTIC-L (in the words of our founder) "... has been sharing both casual banter about the varied impact that CF has on our lives, as well as technical and medical information exchanges that help us to overcome the more unpleasant factors that this silly little gene imposes upon us."
Denmark - CF Association
Danish National Site on Cystic Fibrosis, contains Information, Links and much more France - SOS Mucoviscidose
Both in French/English French National Site on Cystic Fibrosis, contains Information, Links and much more Genevieve's Cystic Fibrosis Site
My name is Genevieve. I was born in 1975, and I have a disease called Cystic Fibrosis. In this website, I talk about my personal story with CF, and alternative therapies I have used besides antibiotics. I will constantly update this site with new topics, so please make sure you come back to visit. Germany - CF-Selbsthilfe Köln e.V.
In German/EnglishMit den folgenden Seiten wollen wir dazu beitragen, daß die Krankheit Cystische Fibrose, auch Mukoviszidose genannt, bekannter wird. Leider ist die häufigste Erbkrankheit unserer Bevölkerung bei vielen vollkommen unbekannt.With this site we try to make Cystic Fibrosis - in Germany often called Mukoviszidose - better known in the public. Unfortunately the most common genetic disease of the caucasians is pretty unknown in wide parts of the population.
IACFA
IACFA, the International Association of Cystic Fibrosis Adults, was founded in 1982 and organized according to Swiss Civil Code. IACFA's headquartered in Zurich, Switzerland and comprised of elected Executive Committee members from around the world. IACFA is a non profit organization fully dependent upon private donations. IACFA has no salaried employees, or rental offices or properties permitting all donations to directly serve the CF community. Israel -Cystic Fibrosis Foundation of Israel
Both in Hebrew/English The cystic fibrosis center located at the Carmel Medical Center in Haifa is the largest CF center in northern Israel. The center cares for patients of all ages with CF, from infancy to adulthood. The aims of the center are to provide a comprehensive range of diagnostic and therapeutic approaches. The multidisciplinary team includes- physicians: pulmonologist, gastroenterologist, endocrinologist and infectious disease, A specialized nurse, physiotherapist, social worker and dietitian. Italy - Centro Fibrosi Cistica della Toscana
Cosa e' la fibrosi cistica ?La fibrosi cistica (FC), o Mucoviscidosi e' una delle malattie ereditarie piu' frequenti della popolazione caucasica.
Un bambino su 2500-3000 nati e' colpito da questa affezione. La malattia e' dovuta alla produzione di muco particolarmente denso e viscoso da parte di molte ghiandole. Gli organi piu' interessati sono i polmoni e l'apparato gastroenterico.
La fibrosi cistica puo' presentarsi in forme diverse che variano considerevolmente da un soggetto ad un altro per l'età in cui si manifestano i primi sintomi, il tipo di questi e la gravita' della malattia.
Jake Shasserre Home Page
Hello my name is Jake Shasserre. I have cf ever since I was born. CF is a hard thing to live with, but I want you to know that all you have to do is have hope and confidence in yourself.t now I am 18 years old and I am a freshman attending East Central College in Missouri. I love to play baseball, softball anything to do with hitting a ball basically. Im an easy going type guy. If you want to talk to me I am on MSN a lot. My email is jake_the_snakers@hotmail.com
Just Giving
The Cystic Fibrosis Trust funds research into a cure for Cystic Fibrosis, the UK's most common life-threatening inherited disease. Living With CF
Hi, My name is Yancee Mathews. I have Cystic Fibrosis. I was diagnosed when I was born (1978). I created this web page for everyone to come and view my thoughts on living with CF. My Life with Cystic Fibrosis
My name is Sarah, I am an 18 year old with Cystic Fibrosis (CF). I was diagnosed when I was 2 years old in Washington D.C., where we lived at the time. Shortly after my diagnosis, we moved to Memphis, Tennessee, where I have lived ever since. Mycysticfibrosis.com
Mycysticfibrosis.com is a free resource for people living with cystic fibrosis (CF). This site contains personal management tools to help track important health measures on a daily basis. Netherlands - Dutch CF Association
Dutch National Site on Cystic Fibrosis - Information, Links and much more New Zealand - Cystic Fibrosis
This is the National Site of New Zealand Sandy Cochran's Cystic Fibrosis Page
Hi, My name is Sandy. I am 28 years old and I was born with a genetic disease called Cystic Fibrosis, (CF for short). A lot of people have never heard of CF before, and that is why I wanted to make a web site where they could learn almost all about it. South African - Cystic Fibrosis Association
Cystic Fibrosis is a life threatening childrens’ disease. It causes two major problems from birth, a very high susceptibility to bacterial infection of the lungs, and malfunctioning of the pancreas interfering with digestion and therefore growth. Although early diagnosis and treatment have significantly improved the outcome, the disease remains a life threatening condition. Treatment after diagnosis must be continuous. Sweden - CF Association
Swedish National Site on Cystic Fibrosis, contains Information, Links and much more The Billy Cook Foundation
The Billy Cook Foundation was established in the memory of our dear friend and son, William Ivor Cook, Jr. For almost 30 years, Billy battled against Cystic Fibrosis, the most common fatal disease among young children. He was on the University of Pennsylvania transplant list for a double lung transplant for 18 months. After living life fully, enjoying every day, and making many, many friends along the way, Billy passed away on January 14, 1999. Family and close friends came together on that day to form this Foundation. Our goals are to help CF patients and their families with the day-to-day expenses associated with this terrible disease, by providing financial assistance; and to increase public awareness for the need for organ donation. The European Cystic Fibrosis Society
The ECFS aims to achieve the best possible treatment and the highest quality of life for the patient with cystic fibrosis by the development and distribution of knowledge in the field of cystic fibrosis The polymorphic nature of cystic fibrosis has resulted in the involvement of a large number of different clinical and scientific disciplines for the study and treatment of the disease. The European Cystic Fibrosis Society provides a European forum where such clinicians and scientists can meet, present and discuss the latest findings concerning the disease. USA - The Cystic Fibrosis Foundation
The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.The Cystic Fibrosis Foundation is proud to be a resource of information about cystic fibrosis. The information provided here should never take the place of advice from your personal health care provider. Be sure to check with your physician about changes in your treatment regimen. Read about how cystic fibrosis got the name "65 Roses".
