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Links: Disfigurement - Medical Condition

The British Association of Skin Camouflage

Disfigurement can be devastating and psychologically damaging to men, women and children of all ages, irrespective of nationality or skin tone During the 1950’s Joyce Allsworth researched and implemented the concept of remedial skin camouflage within the United Kingdom. She went on to form the British Association of Skin Camouflage in 1985

Birmingham Cranifacial Unit - NHS Hospital (United Kingdom)

The Birmingham Craniofacial Unit was established in 1978,and has treated over 500 Paediatric and Adult cases. The Paediatric unit is based at the Birmingham Children`s Hospital. The adult unit is based at the Queen Elizabeth Hospital, Both are located in Birmingham,West Midlands, United Kingdom

Changing Faces

Changing Faces can help you change the way you face disfigurement... supporting children and adults who have a disfigurement working with health and social care professionals raising public awareness and working for equal opportunities

Childrens Craniofacial Association

Children`s Craniofacial Association is a national, 501(c)3 nonprofit organization, headquartered in Dallas, Texas, dedicated to improving the quality of life for people with facial differences and their families. Nationally and internationally, CCA addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions. CCA`s mission is to empower and give hope to facially disfigured children and their families.

CLAPA - Cleft Lip and Palate Association - United Kingdom

CLAPA was set up in 1979 as a partnership between parents and health professionals. It provides support for new parents, and for people with the condition and their families, from infancy through to adulthood. It is the only UK-wide voluntary organisation specifically helping those with and affected by cleft lip and palate. It is unique.

Cleft Palate Unit - Guys Hospital

Cleft children have been treated at Guy`s Hospital for over 80 years. In 1989 Professors David Poswillo and William Houston established a Cleft Palate Unit at Guy`s based on the then new concept of a multi-speciality team approach to cleft management as recommended by the American Cleft Palate & Craniofacial Association.

Contact A Family

Every day over 75 children in the UK are born or diagnosed with a serious disability or rare syndrome and the vast majority of them are cared for at home. Contact a Family is the only UK charity providing support and advice to parents whatever the medical condition of their child. We provide information for adults with rare disorders as well as to families of disabled children.

Craniofacial Anomalies Network (CRANE)

The Craniofacial Anomalies Network (CRANE) collects data on patients seen by Cleft Lip and Palate Teams in England. CRANE is housed at the Perinatal Institute in Birmingham. The English National Health Service (NHS), through the Cleft Levy Board, funds CRANE. The CRANE Advisory Board manages CRANE. Representatives from the main specialities involved in Cleft care are members of the Board together with representatives from the Cleft Levy Board, a parent support group, the President of the Craniofacial Society of Great Britain and Ireland and representatives from countries that CRANE collects data for.

Face the Future

Information for people Living with a Facial Disfigurement

How Come You Look Different?

Comprehensive list of Links. Excellent start to find the information you require.


Outlook is a NHS Service offering support and help for people of all ages who are coming to terms with a different or unusual appearance or a disfigurement. They offer a counselling service, summer groups and individual sessions to help you: ? Handle bullies ? Handle staring/questions ? Make new friends ? Feel brighter and more confident.

Red Black White

For children under 18 suffering from Port Wine Stain and other birthmarks

The Birthmark Support Group

The Birthmark Support Group was set up in December 1998 at the suggestion of Drs Harper and Syed from Great Ormond Street Hospital for Children to provide a UK based support group for anyone with a birthmark. The word Birthmark is a common term used to describe the various birthmark types of which port wine stain, haemangioma and congenital melanocytic naevus are all examples.
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