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Links: Facial Differences - International - Medical Condition

Children's Craniofacial Association - CCAKids.com

Children's Craniofacial Association is a national, 501(c)3 nonprofit organization, headquartered in Dallas, Texas, dedicated to improving the quality of life for people with facial differences and their families. Nationally and internationally, CCA addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions. CCA's mission is to empower and give hope to facially disfigured children and their families.

FACES- The National Crancofacial Association

Over 82,000 babies are born each year with some type of anomaly affecting their face, head, and/or neck. Parents of these children need somewhere to turn for valuable information and words of reassurance.

How Come You Look Different?: Resources Craniofacial Anomalies

Comprehensive list of Links. Excellent start to find the information you require.

Leppe-/ganespalte foreningen - Norway

Leppe-/ganespalteforeningen ble konsituert på Bredtvet senter for logopedi i Oslo, 11. juni 1988. Foreningen er en ideell og upolitisk forening, som skal være en interesseforening for barn, ungdom og voksne med leppe-/ganespalte. Enhver med interesse for foreningen kan være medlem. I år 2001 er foreningen 13 år. Vi er nå omtrent 500 medlemmer, og 5 lokallag. I tillegg har vi en fylkeskontakt i hvert fylke. Vi har et veldig godt samarbeid med spalte teamet på Rikshospitalet og Haukeland.

Lets Face It - USA

Let's Face It USA is a nonprofit network that links people with facial disfigurement and all who care for them to resources that can change their lives.

Stichting Schisiscentrum Rotterdam

HET KIND MET SCHISIS Informatie over kinderen met aangeboren lip-, kaak- en gehemelte spleten.

The Cleft Lip & Palate Association of Ireland

The Cleft Lip & Palate Association of Ireland (CLAPAI), registered charity, is a voluntary group formed to provide support and information for parents of children affected by cleft lip and palate and those directly affected by the condition.

The Personal Side of Craniofacial Differences

This page is dedicated to all of the people whose lives are affected by Craniofacial Disorders. If you are one of these people - this page is for you. Please look upon this page as "yours." I will need assistance from everyone to help locate as many personal pages on these disorders as we can find.


Is an American web site run by Michael Steffano who has a facial port wine stain. Michael set up the site to supply information and support for people with birthmarks. In the same way that the Birthmark Support Group reflects a UK perspective on treatment and information, Michaels site reflects the american viewpoint.
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