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Links: Huntingdons Disease - International - Medical Condition

Associazione Italiana Core di Huntingdon (Italy)

The A.I.C.H. of Milan, a voluntary service organization , the Site is both in English/Italian

Australian Huntingdon's Disease Association

AHDA (Vic) provides a comprehensive range of support services to any person affected in any way by Huntington's disease.

CURE HD Foundation

My name is Robert Bishop. I am 40 years old and the father of five children (ages 16, 13, 10, 7, and 5). In 1998, I sold my computer software business to take up the cause of fund raising and public awareness for a terminal illness called Huntington's Disease (HD). Unless a cure is found, 2 or 3 of my children will tragically die from this disease. Each has a 50% chance of having inherited a defective gene from their mother (who became symptomatic for HD in her mid-twenties).

deutsche huntington hilfe e.V.

Excellent German site. You can also navigate this site in either French or English by clicking on one of the flags on the home page.

HD Lighthouse

This is the Site to start your search for information run by Jerry Lampson, Lighthouse Keeper

Hereditary Disease Foundation

The Hereditary Disease Foundation is a non-profit, basic science organization dedicated to the cure of genetic disease. 100% of all publicly donated funds is directed to the support of biomedical research. Our program includes research grants, John J. Wasmuth postdoctoral fellowships, Milton Wexler postdoctoral fellowships and the Lieberman Award. A centerpiece of the Foundation is the program of interdisciplinary Mary Jennifer Selznick workshops held many times during the year. These small, informal, free-wheeling workshops foster dialogue among researchers, from a variety of fields, who come without prepared lectures or slides to converse across disciplinary borders.

Huntingdon Society of Canada

The Huntington Society of Canada (HSC) was founded in 1973 by Ralph and Ariel Walker in their home town of Cambridge, Ontario. Since then, HSC has grown into a strong national organization with 60 volunteer chapters and area representatives across the country and professionally-staffed Resource Centres in most provinces.

Huntingdon's Disease Society of America

The Huntington’s Disease Society of America(HDSA) is dedicated to finding a cure for Huntington’s Disease (HD) while providing support and services for those living with HD and their families. HDSA promotes and supports both clinical and basic HD research, aids families in coping with the multi-faceted problems presented by HD and educates the families, the public and health care professionals about Huntington’s Disease. Our HD families give a face to Huntington’s Disease; HDSA is its voice.

Huntingdons Scene in New Zealand

The 3 Associations were established around 1980 by families who were frustrated by the lack of services and who felt isolated. They had become aware of similar organisations overseas, the first having been founded in 1967 by Marjorie Guthrie in the USA.

International Huntington Association

The International Huntington Association (IHA) is a federation of national voluntary health agencies that share common concern for individuals with Huntington's Disease (HD) and their families. Each agency promotes lay and professional education; individual and family support; psycho-social, clinical and biomedical research; and ethical and legal considerations related to Huntington's Disease in its respective country.

New Zealand - Huntingtons Diseas Association

The Huntington's Disease Association (Auckland) Inc is an Incorporated soceity servicing the people of the greater Auckland and Northland areas. The association links with Wellington, Christchurch and Midland within New Zealand and has joint affiliation with the International Huntington Association.

Robert Laycock's Site (Canada)

This is a new, pared-down version of my home page for Huntington's disease. Many of the resources and news releases I had on my old page were very stale and and I had given up long ago trying to keep up-to-date with recent research. My emphasis now is to try to provide, as always, a caring starting point for people who are recently aware that their lives are touched by this devastating disease. Please be aware that I am only a lay person whose family is affected by HD and not a medical expert of any kind. Only your doctor or other medical professional can offer you advice or recommend treatment and nothing on these pages should be interpreted as doing so.
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