Links: Muscular Dystrophy - International - Medical Condition
Australia - Muscular Dystrophy Association
When my son Ryan Struk, was diagnosed with DMD in 1983, there was little information available about this `unknown` disorder. The following years saw great development in the scientific understanding of DMD and other Neuromuscular Disordsers (NMD) as well as huge improvements in the area of Information Technology.Family Village
The Families of S.M.A. (Spinal Muscular Atrophy) organization promotes and funds research, provides families with the use of their equipment pool to help alleviate the high cost of medical equipment, promotes public awareness, provides networking, and funds a roster at Indiana University, enabling researchers a central location from which to access necessary family information. They also provide families who have little or no insurance with financial assistance in the purchase of necessary equipment.Finland - Lihastautiliitto
In both Finnish/EnglishThe Finnish Neuromuscular Disorders Association - is the organisation for persons with neuromuscular disorders, their family members and other supporters. The principal task of the organisation is bringing people together to share their experiences and to acquire advice, guidance and support from each other and experts in order to cope with the condition. Lihastautiliitto has about 3000 members. It has twelve regional branches and five local clubs, and also an active youth section that plans its own activities.FSH or FSHD) Muscular Dystrophy & Resources
My name is John, and this is my personal web page with information about Facioscapulohumeral Muscular Dystrophy (FSH or FSHD). Plus, information about disability and medical products, including resources and services for men, women and children with disabilities. I hope this site will be useful to you, and please feel free to add this site to your favorites.Ireland - Muscular Dystrophy
Muscular Dystrophy Ireland provides support to persons with neuromuscular conditions and their families through the provision of a range of support services.Japan - Japan Muscular Dystrophy Association
In Japanese/EnglishMuscular dystrophy is a disease in which muscles undergo degeneration and become atrophic and weak with unknown cause.Patients with muscular dystrophy gradually become unable to stand, walk, run, or grasp an object in their hands as muscular weakness progresses. Most of them eventually need support to perform. even the tasks of daily living.The main activities of the Japan Muscular Dystrophy Association (Corporation) are to promote research into, and treatment of muscular dystr-ophy, to encourage patients and their families, and to help improve patients` quality of life.
Netherlands - De Vereniging Spierziekten Nederland
In both Dutch/English De Vereniging Spierziekten Nederland komt op voor mensen met een spierziekte. Het gaat de VSN om een betere kwaliteit van de zorg. Effectief wetenschappelijk onderzoek. Goede voorlichting en informatie, ook voor artsen en professionele hulpverleners. Al 30 jaar zet de VSN zich hiervoor in.The Dutch Neuromuscular Diseases Association The Vereniging Spierziekten Nederland (VSN) is an active and dynamic Association of and for people with a neuromuscular disease. The VSN aims to protect the interest of its members. Its activities are aimed at information, mutual support and stimulating scientific research.
New Zealand - Muscular Dystrophy Association
The services offered by the Muscular Dystrophy Association are unique, diverse and defined by our members. They are based on the considerable expertise and information resources by the Muscular Dystrophy Association has accumulated over the years.These include:
A unique and specialised Client Support Programme
Public promotion and Education about the implications of Muscular Dystrophy and related Neuromuscular Conditions
Support of research projects within New Zealand.
Research and production of specialised information regarding Muscular Dystrophy and related Neuromuscular Conditions
Publication of a magazine 'In Touch', 4 times per year
Provision of an 0800 freephone for members Network and liaison with other health/disability based organisations
Support network