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Links: Stickle Cell Disease - International - Medical Condition

BandAids & Blacboards

A website, designed to improve the quality of life for children growing up with serious medical problems. This is a site about growing up with medical problems ...any ole type. Its goal is to help people understand what it's like, from the perspective of the children and teens who are doing just that. These kids have become experts at coping with problems that most of you have never heard of. They'd like you to know how they do it, and they hope that you'll be glad you came to visit. I've divided the contents into three ponds; one for kids, one for teens, and one for adults. Figure out which you are, and jump in.

Brussels Red Blood Cell Sickle Cell Information

In French and English about sickle cell disease and other anemias from Erasme University Hospital - Brussels Belgium

Childrens Healthcare of Atlanta

Children’s Healthcare of Atlanta is dedicated to enhancing the lives of children through excellence in patient care, research and education. Children’s addresses the unique needs of sick and injured children and their families with specially trained physicians and staff, equipment designed for young, growing bodies and a child-friendly environment.

International Association of Sickle Cell Nurses and Physician Assistants - IASCNAPA

MISSION STATEMENT: The International Association of Sickle Cell Nurses and Physician Assistants (IASCNAPA) recognizes its responsibility to maintain high standards in the provision quality and accessible health care services for individuals with sickle cell disease. IASCNAPA committed to strengthening the relationship between nurses and physician assistants that care for patient with sickle cell disease. The nurse and physician assistant make significant contributions that further the: depth of knowledge about sickle cell disease. Our cooperative efforts allow us to play vital roles in clinical research as demonstrated by our participation in National Institutes of Health studies that defined the natural history of sickle cell disease and proven the efficacy of prophylactic penicillin: children with the disease. It is in this spirit of cooperation that IASCNAPA lists the following Goals and Objectives:

Joint Center for Sickle Cell and Thalassemic Disorders

The information at this site is a free service to the biomedical community. The goal is to provide a source of current information on sickle cell disease, thalassemia, and disorders of iron metabolism. The site includes overviews of basic and clinical research, management, and new developments in the fields. The information and opinions presented are those of the authors. These should not be viewed as management recommendations for specific patients. The opinions expressed here are not those of Brigham and Women's Hospital or the Harvard Medical School. Comments and suggestions are welcomed.

Medical University of South Carolina

Sickle cell disease (SCD) has a high prevalence in the Lowcountry of South Carolina where 1 in 8 African Americans has sickle cell trait. In the past two decades, the Pediatric Sickle Cell Center at MUSC has been at the forefront of a nation wide effort to provide care for patients with sickle cell disease.

Sickle Cell Advocates for Research and Empowerment,Inc.

The first community based website by and for people with sickle cell disease, their families and friends, dedicated to the sharing of information and the development of resources and advocacy skills

Sickle Cell Advocates group for the North Shore

Massachusetts- Felicia Moore-Egbe, R.N., a nurse at both Salem and Union hospitals, has formed Sickle Cell Advocates of the North Shore, a group dedicated to increasing sickle cell disease awareness, providing referrals and establishing a support group for people and their families stricken with the disease.

Sickle Cell Disease Association of America

"To promote finding a universal cure for sickle cell disease and to improve the quality of life for individuals and families where sickle cell disease related conditions exist."

Sickle Cell Foundation of Georgia, Inc.

The mission of the Sickle Cell Foundation of Georgia, Inc., is dedicated to providing education, screening and counseling programs for Sickle Cell and other abnormal hemoglobins. The Foundation has a deep-rooted commitment to making strides in monitoring the occurrence of Sickle Cell, improving the quality of life for those with the disease and cooperating with individuals and institutions conducting research.

Starbright Foundation

The STARBRIGHT Foundation is dedicated to the development of projects that empower seriously ill children to combat the medical and emotional challenges they face on a daily basis. STARBRIGHT projects do more than educate or entertain: they address the core issues that accompany illness – the pain, fear, loneliness, and depression that can be as damaging as the sickness itself.

The Howard University Center for Sickle Cell Disease

The Howard University Center for Sickle Cell Disease was founded in 1972 by Dr. Roland B. Scott following the passage of the Sickle Cell Anemia Control Act of 1971 into U.S. Law. Because of Dr. Scott's efforts, legislation was developed and passed which authorized the implementation of a series of Comprehensive Centers for Sickle Cell Disease under the National Heart, Lung, and Blood Institute (NHLBI) of the National Institutes of Health (NIH). The Howard University Center was one of the centers to be developed under this concept.

The Jamaican Sickle Cell Unit and Medical Research Council

The work of the Sickle Cell Unit over the last 30 years has focused on studies of the natural history of sickle cell disease to determine some of the factors influencing severity. This information has been used to develop measures preventing some complications of the disease and the more effective treatment of complications for which our current knowledge does not allow prevention.

The Sickle Cell Network

The Sickle Cell Network is a quarterly newsletter published by the Sickle Cell Project. The Project hopes that this newsletter will help people with sickle cell and their families feel less alone and more connected with each other; stay informed on topics related to sickle cell; and be aware of upcoming activities, educational opportunities, and support available in their communities.

The University of Texas at Dallas - UTD Sickle Cell Disease Research Center Grand Opening

The UTD SCDRC came into existence on August 1, 2001 with the hiring of Dr. Steven R. Goodman as its Director. Dr. Goodman came from the University of South Alabama College of Medicine where he was both the Chairman of the Department of Cell Biology and Neuroscience and the Director of the NIH funded USA Comprehensive Sickle Cell Center. The fundamental purpose of the UTD Sickle Cell Disease Research Center is to work towards better treatments, and ultimately a cure for Sickle Cell Disease based on the highest quality Basic Research Program. This basic research program will include studies of why sickle cells become dense and irreversibly sickled, regulation of globin switching, and gene therapy for sickle cell disease. As a non Medical School, UTD can bring to medical research the full range of American science because of the close association of biologists, chemists, physicists, mathematicians, and engineers. The UTD SCDRC together with the UT Southwestern Medical Center Sickle Cell Program, led by Dr. George Buchanan, has formed the Southwestern Sickle Cell Center which has applied for the next round of NIH Center funding.
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